TW Members. Introspection on an Epic scale.

If you have a life outside of BWFC, then this is the place to tell us all about your toilet habits, and those bizarre fetishes.......

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Burnden Paddock
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Re: TW Members. Introspection on an Epic scale.

Post by Burnden Paddock » Sat Nov 26, 2016 2:48 pm

Thanks for the update AG. That's fantastic to read. Freddie is a real fighter!

To all concerned. :pray:

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Bruce Rioja
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Re: TW Members. Introspection on an Epic scale.

Post by Bruce Rioja » Sat Nov 26, 2016 3:47 pm

Go Freddie. Made-up to learn that it's all going so well, AG. :pissed:
May the bridges I burn light your way

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Re: TW Members. Introspection on an Epic scale.

Post by Worthy4England » Sat Nov 26, 2016 4:15 pm

Bruce Rioja wrote:Go Freddie. Made-up to learn that it's all going so well, AG. :pissed:
Well said that fella and absolutely seconded. :pissed:

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Re: TW Members. Introspection on an Epic scale.

Post by Abdoulaye's Twin » Sat Nov 26, 2016 4:42 pm

And 3rded. Go Freddie.

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Re: TW Members. Introspection on an Epic scale.

Post by Annoyed Grunt » Sat Nov 26, 2016 5:41 pm

We've been very fortunate things, so far, have turned out well.

A little girl that had the same condition as Freddie, had a transplant the month after him, passed away 2 weeks ago in her sleep. This little girl https://www.facebook.com/Afightagainstneuroblastoma/" onclick="window.open(this.href);return false; was in the next bed on Ward 84 when Freddie first got admitted, she passed away last Sunday.

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Re: TW Members. Introspection on an Epic scale.

Post by boltonboris » Mon Nov 28, 2016 10:50 am

Annoyed Grunt wrote:We've been very fortunate things, so far, have turned out well.

A little girl that had the same condition as Freddie, had a transplant the month after him, passed away 2 weeks ago in her sleep. This little girl https://www.facebook.com/Afightagainstneuroblastoma/" onclick="window.open(this.href);return false; was in the next bed on Ward 84 when Freddie first got admitted, she passed away last Sunday.
Just read that pinned post and not ashamed to say I wiped a tear away. Absolutely heartbreaking what some children and parents have to go through. :cry:
"I've got the ball now. It's a bit worn, but I've got it"

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Re: TW Members. Introspection on an Epic scale.

Post by Annoyed Grunt » Sun Dec 25, 2016 9:17 am

Image
Image

What a difference a year makes. Merry Christmas everyone.

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Re: TW Members. Introspection on an Epic scale.

Post by malcd1 » Sun Dec 25, 2016 10:43 am

Great to see AG. I hope you have a great Christmas with your family.
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Re: TW Members. Introspection on an Epic scale.

Post by Worthy4England » Sun Dec 25, 2016 11:02 am

Brilliant. Made my day, too.

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Re: TW Members. Introspection on an Epic scale.

Post by Little Green Man » Sun Dec 25, 2016 11:18 am

Annoyed Grunt wrote:What a difference a year makes. Merry Christmas everyone.
Image

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Re: TW Members. Introspection on an Epic scale.

Post by TANGODANCER » Sun Dec 25, 2016 11:42 am

Heartning. Merry Christmas to Freddie and all your family A.G.
Si Deus pro nobis, quis contra nos?

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Re: TW Members. Introspection on an Epic scale.

Post by Prufrock » Sun Dec 25, 2016 11:50 am

Good lad! Happy Xmas!
In a world that has decided
That it's going to lose its mind
Be more kind, my friends, try to be more kind.

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Re: TW Members. Introspection on an Epic scale.

Post by Montreal Wanderer » Sun Dec 25, 2016 1:55 pm

What a feel good moment! Merry Xmas to Freddie and family.
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Re: TW Members. Introspection on an Epic scale.

Post by Gary the Enfield » Sun Dec 25, 2016 2:20 pm

Merry Christmas Freddie.

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Re: TW Members. Introspection on an Epic scale.

Post by Bruce Rioja » Sun Dec 25, 2016 4:34 pm

Wonderful pictures, AG. I'm sure you're all having a fantastic time - and well deserved.
May the bridges I burn light your way

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Re: TW Members. Introspection on an Epic scale.

Post by LeverEnd » Mon Dec 26, 2016 2:26 am

Yes everything everyone else said and all the best to you Freddie and the whole family.
...

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Re: TW Members. Introspection on an Epic scale.

Post by Abdoulaye's Twin » Mon Dec 26, 2016 9:57 am

What everyone else said. Merry Christmas AG and Freddie (and everyone else) :D

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Re: TW Members. Introspection on an Epic scale.

Post by Annoyed Grunt » Tue Dec 27, 2016 2:43 pm

Thanks gents.

He rang the end of treatment bell this time last year.

https://www.facebook.com/jason.branthwa ... 5260735011" onclick="window.open(this.href);return false;

I'm also fundraising again for Anthony Nolan, if you're able to spare a few pounds I'd be eternally grateful.


http://www.justgiving.com/Jason-Branthwaite1" onclick="window.open(this.href);return false;

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Re: TW Members. Introspection on an Epic scale.

Post by Annoyed Grunt » Thu Mar 30, 2017 10:07 pm

He's still doing well. Although his development seems to be hindered somewhat. He's not eating as other kids are. He won't eat at nursery, so goes pretty much all day without food and then wolfs down his tea. His speech isn't that of an almost 3 year old, he can only say single words, no sentences. But, he's still here and that's the main thing.

You were all fantastic sponsoring me last year, I'm doing Ride London again this year. Also, I've pledged that if I can get to £600, I'll shave my head. If you can spare some money I would be grateful https://www.justgiving.com/fundraising/ ... anthwaite1

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Gary the Enfield
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Re: TW Members. Introspection on an Epic scale.

Post by Gary the Enfield » Fri Mar 31, 2017 1:04 pm

Annoyed Grunt wrote:
Thu Mar 30, 2017 10:07 pm
He's still doing well. Although his development seems to be hindered somewhat. He's not eating as other kids are. He won't eat at nursery, so goes pretty much all day without food and then wolfs down his tea. His speech isn't that of an almost 3 year old, he can only say single words, no sentences. But, he's still here and that's the main thing.

You were all fantastic sponsoring me last year, I'm doing Ride London again this year. Also, I've pledged that if I can get to £600, I'll shave my head. If you can spare some money I would be grateful https://www.justgiving.com/fundraising/ ... anthwaite1
AG thanks for the update. If it helps, when my boy was Freddie's age he ate poorly too. He wasn't fussy as such, just didn't like too much variety. We figured what the hell, he can eat what he wants, if it helps him gain weight. So we did that, for a while. Meal preparations became less stressful and he gained weight.

As for the speech we found that reading both with him and on his own developed his speech fantastically well. We would read books sporadically through the day and bedtime routine always concluded with a story. There should be a speech and language specialist at the local hospital you could speak to for this.

Good luck in Ride London. Haven't been on the bike in six months..........

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